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CDCN and CSTL team at Penn highlighted by USA Today

WEBWhile looking for options for people with rare diseases, Fajgenbaum’s group has also taken on repurposing drugs to treat COVID-19. The nearly 2-year-old program, called …

Actived: Just Now

URL: https://cdcn.org/news/could-treatments-for-rare-diseases-be-found-in-neighborhood-pharmacies-new-uses-for-old-drugs-offer-promise/

David Fajgenbaum

WEBDr. David Fajgenbaum, MD, MBA, MSc, FCPP, is the co-founder and President of the Castleman Disease Collaborative Network (CDCN), Founding Director of the Center for …

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Why randomized controlled trials are crucial for …

WEBLopinavir is a protease inhibitor that is combined with ritonavir to increase plasma half life. Lopinavir/ritonavir was suggested as a treatment for COVID-19 due to studies showing …

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International, evidence-based consensus treatment …

WEBSpecial Report International, evidence-based consensus treatment guidelines for idiopathic multicentric Castleman disease Frits van Rhee,1 Peter Voorhees,2 Angela Dispenzieri,3 …

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David Fajgenbaum

WEBDavid Fajgenbaum, MD, MBA, MSc, FCPP, is an Assistant Professor of Medicine in the Division of Translational Medicine & Human Genetics at the University of Pennsylvania, …

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Arthur Rubenstein

WEBArthur Rubenstein, MBBcH, is a Professor of Medicine at the University of Pennsylvania in the division of Endocrinology, Diabetes, and Metabolism and Dean Emeritus/Former …

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Research Pipeline: Leading To Personalized Medicine CDCN

WEBSince it was first established in 2012, the CDCN has connected the global community of physicians, researchers, patients and loved ones to accelerate CD research, treatment, …

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Join the Registry FAQs

WEBWe recognize that sharing your health information can be a difficult choice. We want to make sure that you feel comfortable providing this information and wanted to address …

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ACCELERATE: A Patient-Powered Natural History Study Design …

WEBArticle ACCELERATE: A Patient-Powered Natural History Study Design Enabling Clinical and Therapeutic Discoveries in a Rare Disorder Sheila K. Pierson,1 Johnson S. Khor,1 …

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Ongoing symptoms and reduced health measures in …

WEBOngoing symptoms and reduced health measures in unicentric Castleman disease patients despite perceived-to-be curative surgical excision. Freda R. Coren

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Clinicopathologic analysis of TAFRO syndrome demonstrates …

WEBClinicopathologic analysis of TAFRO syndrome demonstrates a distinct subtype of HHV-8-negative multicentric Castleman disease Noriko Iwaki,1,2 David C. Fajgenbaum,3 …

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Guidance on COVID-19 vaccination for Castleman disease patients

WEBGuidance from the CDCN Scientific Advisory Board members on COVID-19 vaccination for Castleman disease patients. This letter is not the official policy of the …

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SYMPTOM BURDEN IN PATIENTS WITH IDIOPATHIC …

WEBsymptom burden in patients with idiopathic multicentric castlemen disease and its impact on daily life: an international patient and caregiver survey

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