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Updated 2018 SMA Standards of Care Statements Available Online

WebThe 2018 SMA Standards of Care recommendations were published in Neuromuscular Disorders in February 2018 and March 2018 and are available online …

Actived: 7 days ago

URL: https://www.curesma.org/updated-2018-sma-standards-of-care-statements-available-online/

Clinical Resources

WebMake today a breakthrough. This page includes resources for clinicians helping to improve quality of care for individuals with spinal muscular atrophy (SMA). Quick Links …

Category:  Health Go Health

Testing & Diagnosis

WebMake today a breakthrough. A spinal muscular atrophy (SMA) diagnosis must be confirmed through genetic testing. SMA is diagnosed after noticing symptoms of SMA, through …

Category:  Health Go Health

Early Check: Expanded Screening in Newborns, Trial ID 18-0009

WebEarly Check provides voluntary screening of newborns for a selected panel of conditions. The study has three main objectives: 1) develop and implement an approach to identify …

Category:  Health Go Health

SMA Newborn Screening Advancements

WebSMA Newborn Screening Advancements. The first FDA approval of a therapy for SMA has created an opportunity for our community to move forward on …

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Safety and Efficacy of NMD670 in Ambulatory Adult Patients With …

WebProtocol Summary. The purpose of this study is to evaluate the efficacy, safety, tolerability and pharmacokinetics of NMD670 in the treatment of ambulatory adults with spinal …

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Published SMA Research

WebCure SMA and its partners publish papers concerning important research on spinal muscular atrophy (SMA). Below is the latest SMA Industry Collaboration and Cure SMA published …

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Prospective Evaluation of Infants With Spinal Muscular Atrophy:

WebSPOT SMA is a prospective NIH-supported clinical study targeting pre-symptomatic or recently diagnosed infants and children with Spinal Muscular Atrophy (SMA) types 1, 2, …

Category:  Health Go Health

The Discovery of SMA

WebIn 2016, the spinal muscular atrophy community celebrated the approval of the first-ever treatment that targets the underlying genetic cause of SMA. This was a …

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About SMA for Healthcare Providers

WebMake today a breakthrough. Spinal muscular atrophy (SMA) is a genetic, progressive neurodegenerative disease characterized by weakness of the skeletal and respiratory …

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Cure SMA Care Center Network

WebMake today a breakthrough. The mission of the Cure SMA Care Center Network is to provide the best healthcare including offering new therapies and to gather and …

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LIVING UNLIMITED WITH SMA

Web4 | The time around diagnosis can be some of the most overwhelming times you’ve ever experienced as a parent. It’s understandable why that

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A Caregiver’s Guide to ZOLGENSMA (PDF)

WebZOLGENSMA® (onasemnogene abeparvovec-xioi) is a prescription gene therapy used to treat children less than 2 years old with spinal muscular atrophy (SMA). ZOLGENSMA is …

Category:  Health Go Health

Find a Treatment Center

WebIf you have any questions about the information here, contact our national office at (800) 886-1762 or email [email protected], and a member of our team will be in touch. For …

Category:  Health Go Health

SMA STATE FACT SHEET

Web925 Busse Road, Elk Grove Village, IL 60007 | 800.886.1762 | Fax: 847.367.7623 | [email protected] | cureSMA.org SMA INCLUDED ON NATIONAL RECOMMENDED …

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HHS Action Improves Healthcare Accessibility and Strengthens

WebThe U.S. Department of Health and Human Services (HHS) today finalized a rule to increase healthcare accessibility and strengthen federal protections against …

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