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Medical Management

Spinraza (nusinersen), a novel therapy that modifies the SMN2gene in order to increase the production of normal and functional SMN2 protein, has been approved in several regions and countries, … See more

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URL: https://www.mda.org/disease/spinal-muscular-atrophy/medical-management

Spinal Muscular Atrophy (SMA)

WebSpinal muscular atrophy (SMA) is a genetic disease affecting the central nervous system, peripheral nervous system, and voluntary muscle movement (skeletal muscle). Most of …

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Muscular Dystrophy Association Announces Addition of …

WebNEW YORK, NY – March 30, 2022 – The Muscular Dystrophy Association (MDA) today announced the addition of 13 new hospitals and health institutions to the 150+ Care …

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What is Advocacy and Why Should You Care

WebAdvocacy means to me: Having a strong and passionate voice. – Bridget Simpson. To me, being an advocate means, first and foremost, knowing who you are as …

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The Affordable Care Act (ACA) and You

WebThe Affordable Care Act (ACA) and You. The Affordable Care Act (ACA) offers reasonably priced health care coverage to millions of Americans who are uninsured. Apply now! …

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Myotonic Dystrophy (DM)

WebMyotonic dystrophy (DM) is a form of muscular dystrophy that affects muscles and many other organs in the body. The word “myotonic” is the adjectival form of the word …

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Medical Management

WebThanks to advances in many areas of medicine, such as cardiology and pulmonology, people with Duchenne muscular dystrophy (DMD) in the 21st century are living longer …

Category:  Medicine Go Health

Myasthenia Gravis (MG)

WebMyasthenia gravis (MG) is an autoimmune disease — a disease that occurs when the immune system attacks the body’s own tissues. In MG, that attack interrupts the …

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Congenital Muscular Dystrophy (CMD)

WebMuscular dystrophies in general are genetic, degenerative diseases primarily affecting voluntary muscles. Babies with congenital muscular dystrophy are weak at birth and may …

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Becker Muscular Dystrophy (BMD)

WebThe pattern of muscle loss in BMD usually begins with the hips and pelvic area, the thighs, and the shoulders. To compensate for weakening muscles, a person with BMD may walk …

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Medical Management

WebMedical interventions and technology have vastly improved the quality of life for people with ALS by assisting with breathing, nutrition, mobility, and communication. Proper …

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MDA Collaborates with IQVIA to Expand Disease Registry into the …

WebEnhancements will streamline data capture and connect patients with opportunities to participate in new research and take advantage of emerging treatments …

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Myotonic Dystrophy (DM)

WebThe classic form of DM1 becomes symptomatic between the second and fourth decades of life. In these patients, average lifespan is reduced. Patients diagnosed with DM1 have …

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Inclusion-Body Myositis (IBM)

WebThe muscles that lift the front of the foot also may be affected. Inclusion body myositis (IBM) is one of the most common disabling inflammatory myopathies among patients older …

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List of MDA Care Centers Muscular Dystrophy Association

WebChildren's Hospital of New Orleans. 200 Henry Clay Avenue Neuromuscular Clinic, 1st Floor (green elevators) New Orleans, LA 70118. See map: Google Maps. (504) 896-9283 x2. …

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Muscular Dystrophy Association Announces 2024 Muscle Walks in …

WebNEW YORK – February 22, 2024 -- Thousands of people across the country will participate in Muscular Dystrophy Association’s (MDA) MDA Muscle Walk events throughout the …

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Inclusion-Body Myositis (IBM)

WebInclusion-body myositis (IBM) primarily affects men, although women can be affected. It occurs mainly in those older than age 50.1 IBM usually begins with the gradual onset of …

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Agenda Announced for 2024 MDA Clinical & Scientific Conference

WebNEW YORK, December 14, 2023 – The Muscular Dystrophy Association today announced the agenda and Chairs for the 2024 MDA Clinical & Scientific Conference being held …

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Muscular Dystrophy Association Kicks Off 30 Days of Strength …

WebMuscular Dystrophy Association Kicks Off 30 Days of Strength Campaign for National Muscular Dystrophy Awareness Month in September. MDA Board approves 37 research …

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Caring for your Mental Health

WebCaring for Your Mental Health. Mental health, or emotional resilience, can be defined as an individual’s ability to cope with normal life challenges, manage a range of emotions — …

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