Myotonic.org

Myotonic Dystrophy Publications Myotonic Dystrophy Foundation

WEBMyotonic Dystrophy Publications. The Myotonic Dystrophy Foundation (MDF) publishes resources for people living with myotonic dystrophy (DM), their families, …

Actived: 6 days ago

URL: https://www.myotonic.org/toolkits-publications

Health-Related Quality of Life in DM1 Myotonic Dystrophy …

WEBThe U.S. Center for Disease Control and Prevention (CDC) defines health-related quality of life (HRQoL) as “an individual’s or a group’s perceived physical and …

Category: Health Go Health

DM1 Myotonic Dystrophy Foundation

WEBDM1 (also known as Steinert's disease) is the most prevalent form of the condition and generally the most severe. This form affects at least 1 in 2,300 people worldwide or …

Category: Health Go Health

Current Studies and Trials Myotonic Dystrophy Foundation

WEBCognitive Function and Neuroimaging in Myotonic Dystrophy. Conditions : Males and females, ages 7 to 17 years-old, who have been diagnosed with CDM or childhood …

Category: Health Go Health

Insurance Considerations for Myotonic Dystrophy

WEBMyotonic created Health Insurance Considerations for People Living with Myotonic Dystrophy in the United States to help you navigate the process of making …

Category: Health Go Health

Genetic Testing for Myotonic Dystrophy

WEBICD stands for International Classification of Diseases. The current diagnostic code for myotonic dystrophy is 359.21. Updated ICD-10 codes will be …

Category: Health Go Health

The DMCRN Myotonic Dystrophy Foundation

WEBA little over three years ago, MDF awarded a grant to support the establishment of the first-ever Myotonic Dystrophy Clinical Research Network (DMCRN). Based on input from …

Category: Health Go Health

Role of Physical Therapy

WEB2 ole o hysical herapy in the ssessent an Manageent o Iniviuals with Myotonic ystrophy During an initial physical therapy evaluation, the physical therapist will obtain a detailed …

Category: Health Go Health

Consensus-based Care Recommendations for Children with …

WEB4 ot oph T 1 Recommendations a. Refer to genetic counseling (see Genetic counseling) if patients or at-risk family members exhibit clinical signs indicative of DM1, to enable them …

Category: Health Go Health

Myotonic Dystrophy Health Index (MDHI): Measuring Patient …

WEBMyotonic Dystrophy Health Index (MDHI): Measuring Patient-Reported Disease Burden Myotonic Dystrophy Patient-Centered Therapy Development Workshop

Category: Health Go Health

Do We Treat DM as a Brain Disease

WEBMyotonic Dystrophies: State of the Art of New Therapeutic Developments for the CNS Gourdon G, Meola G. Front Cell Neurosci. 2017 Apr 20;11:101. doi: …

Category: Health Go Health

Types of Insurance Plans Myotonic Dystrophy Foundation

WEBThere are two main types of managed care plans within private health insurance: HMO (Health Maintenance Organization) and PPO (Preferred Provider Organization). HMO …

Category: Health Go Health

ny resources you’ve identified.

WEBMedicare: public health insurance that provides insurance for people 65 years old and older, younger persons with disabilities, and people with ESRD.

Category: Health Go Health

Andy Rohrwasser, PhD, MBA Myotonic Dystrophy Foundation

WEBDr. Andy Rohrwasser joined MDF in November 2023. He brings with him a broad and diverse background in academic science, venture backed start-ups and public …

Category: Health Go Health

Health Insurance Considerations for People Living with …

WEBPart B (Medical Insurance): • Part B covers physician and outpatient services, including the services of physical and occupational therapists and home healthcare. Part B also …

Category: Medical Go Health

Capturing What Patients Already Know: The Development and …

WEBWhat is a Patient Reported Outcome Measure? ! A validated outcome measure designed to evaluate one or several aspects of patient health ! Responses are provided directly by …

Category: Health Go Health

ny resources you’ve identified.

WEBUnited Way Pennsylvania, 211 East: This organization provides information and referrals for a broad range of services including child care, after-school programs, food banks,

Category: Food Go Health

DM and Dental Care: the Neglected Health Risk

WEBDarcy Trill, RDHAP, mobile dental hygenist who specializes in the treatment of people with disabilities and special needs in their homes, provides a compelling overview of the risks …

Category: Health Go Health

ny resources you’ve identified.

WEBNavigate Life Texas: Navigate Life Texas serves to help families and parents of children with disabilities or special health-care needs and is designed to offer support, inspiration,

Category: Health Go Health

Public Health Resource Development Internship

WEBThe Public Health Resource Development Intern will be tasked with updating MDF’s current toolkit to be more comprehensive, lay-friendly, and accessible. Literature Reviews: …

Category: Health Go Health

Sexuality with myotonic dystrophy

WEBWhat is sexuality? Includes Biological sex Gender identities and roles Sexual orientation Eroticism Pleasure Intimacy Love life Reproduction Manifests as ØThoughts ØFantasies

Category: Health Go Health

Top Categories

› Appendicitis

› Gout

› Women's Health

› Thyroid

› Sleep

› Skin

› Sexual Health

› Senior Health

› Oral Health

› Mental Health

› Men's Health

› Medications

› Lung Conditions

› Infectious Disease

Popular Searched

› Biden lowering health care costs

› New mexico department of health nurse directory

› Cox health orthopedic clinic

› Tower health selling urgent care

› Advent health security jobs

› Starhealth policy online renewal

› Convey health solutions inc

› Short form health care directive

› Texas life and health exam prep

› Convey health solutions earnings

Recently Searched

› Sidney health center rehab

› Sidney health center fairview mt

› Home health care agencies in utah

› Molina healthcare affinity complaints

› Health and wellness hospital lubbock

› Texas group health insurance cost

› Regional border health somerton az

› Public health internships abroad

› 2025 usps health benefits plan

› Sidney health clinic fairview

The medical information found on the MedRXweb website is designed to support, not to replace the relationship between patient and physician and the medical advice they may provide.