Rarediseases.co.za

Healthcare Rare Diseases South Africa Charity

WEBRare Diseases South Africa is a registered non-profit organisation (NPO 120-991) advocating for a better tomorrow for the #1in15 South Africans impacted by rare …

Actived: 1 days ago

URL: https://www.rarediseases.co.za/

RECOGNISING RARE DISEASES – ACCESS AND ACTION

WEBDespite an 8.5% GDP spend on health care, South Africa is among the worst performing in the world in terms of health outcomes. Dr Crisp noted that a ll healthcare …

Category: Health Go Health

Health Squared: What Now

WEBRare Diseases South Africa (RDSA) has been inundated with calls over the weekend from panicked members of Health Squared Medical Scheme (Health Squared) …

Category: Medical Go Health

Universal Health Care in South Africa

WEBIn September 2019, Member States of the United Nations, including South Africa, signed the most comprehensive and ambitious declaration on health in history …

Category: Health Go Health

Call on United Nations Member States to make Universal Health …

WEB21 September 2023, New York – A high-level meeting at the United Nations Headquarters, UN Member States gathered to accelerate progress towards achieving Universal Health …

Category: Health Go Health

Rare Diseases in South Africa: Bridging the Gap for

WEBRare diseases are an area of healthcare which has been neglected in the past, predominantly due to the high cost of drug research and the limited patient pool …

Category: Health Go Health

Introducing The South African Rare Diseases Access Initiative

WEBThis month our director of research and epidemiology, Dr Helen Malherbe, published yet another correspondence article in the South African Medical Journal …

Category: Medical Go Health

NAVIGATION Rare Diseases SA

WEBnavigation. Patient Navigation is the process by which we guide patients from presentation of symptoms, through to end of life care - through and around barriers in the complex …

Category: Health Go Health

ABOUT US Rare Diseases SA

WEBFounded in 2013, Rare Diseases South Africa (RDSA) is a non-profit organisation advocating to ensure that people living with rare diseases and congenital disorders …

Category: Health Go Health

Intellectual Property in Healthcare: the Patient Perspective

WEBThis makes it difficult, and sometimes impossible, for patients to afford the treatments they desperately need. 2. Health Inequities: Intellectual property doesn't …

Category: Health Go Health

Rare Diseases SA champion private healthcare engagement to …

WEB28th February 2019; Government’s National Health Insurance (NHI) scheme represents a substantial policy shift to restructure healthcare and secure universal health …

Category: Health Go Health

5 Things Rare & Chronic Illness Patients hope you will understand

WEBIt’s fair to say that during times of Covid-19, especially during the early stages of lockdown, there was a mental shift towards treating everyone as though they had …

Category: Health Go Health

Circular 1 of 2024: Iron Deficiency Anaemia as a PMB condition

WEBThe Council for Medical Schemes (CMS) seeks to provide clarity regarding the funding of Iron Deficiency Anaemia as a Prescribed Minimum Benefit (PMB) …

Category: Medical Go Health

Rare Diseases SA responds to signing of Presidential Health …

WEBRare Diseases South Africa (RDSA) has released the statement below in response to the signing of the Presidential Health Compact and in response to the recent Health Budget …

Category: Health Go Health

RARE DISEASES PARTNER PROGRAMME Rare Diseases SA

WEBThe RDSA Rare Diseases Partnership Programme (RDPP) aims to foster a long-term educational relationship and a constructive dialogue between RDSA and commercial …

Category: Health Go Health

RareX: a key forum for the global rare diseases community

WEBRareX 2018 brings together a broad range of South African, African and international rare diseases communities, under the conference theme of “Advocating for …

Category: Health Go Health

September Childhood Cancer Awareness Month

WEBThe burden of the SARS-CoV-2 is further testing our fragile African health care systems. Many caregivers are unemployed due to national lockdowns, there are …

Category: Health Go Health

Experimental cancer drug could be effective in treating idiopathic

WEBResearchers have shown that the medication saracatinib shows promise as a treatment for idiopathic pulmonary fibrosis (IPF). Saracatinib worked as well or better …

Category: Health Go Health

Polio Awareness Week Rare Diseases SA

WEBPolio Awareness Week is a coordinated campaign led by the Department of Health to raise awareness about polio immunization and prevention. The Department …

Category: Health Go Health

World Health Day Rare Diseases SA

WEBAbout the Event. World Health Day is celebrated annually on April 7th. It serves as a global observance to raise awareness about important health issues and to …

Category: Health Go Health

NEWBORN SCREENING WORKSHOP Rare Diseases SA

WEBNewborn Screening in South Africa Workshop. When. 21 Feb 2023, 08:00 – 17:00 SAST. Where.

Category: Health Go Health

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