Scleroderma.org

National Scleroderma Foundation

WebOur Mission The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to …

Actived: 4 days ago

URL: https://scleroderma.org/

Understanding Scleroderma

WebGlossary of Terms. Scleroderma is a rare rheumatic disease that affects connective tissue and the vascular system producing excessive collagen that causes fibrosis in the skin …

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Symptoms of Scleroderma

WebScleroderma, or systemic sclerosis, is a chronic connective tissue disease. It is generally classified as an autoimmune disease. The symptoms of scleroderma vary greatly from …

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What is Scleroderma

WebWhat is Scleroderma? Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as an autoimmune disease. The word “scleroderma” comes …

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Who Gets Scleroderma

WebScleroderma can develop in every age group from infants to the elderly, but its onset is most frequent between the ages of 25 to 55. When doctors say “usually” or “for the most part,” …

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Dental Care in Scleroderma

WebTreatment: • The dentist and dental hygienist works with the patient to develop accommodations for brushing and flossing • More frequent professional care

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2024 National Scleroderma Conference

WebJoin us in Seattle for the 2024 National Scleroderma Conference, July 19-21, 2024. Whether you are newly diagnosed or have had scleroderma for many years, the National …

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About the Foundation

WebThe National Scleroderma Foundation is a 501 (c) (3) charitable organization founded in 1998 to advance medical research, promote disease awareness, and provide support …

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Scleroderma Resource Center

WebFor those who are newly diagnosed. Helpful information about scleroderma and the Foundation. Systemic sclerosis is a form of scleroderma that affects the internal organs. …

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Rutgers-RWJ Scleroderma Program

WebSubscribe and receive a weekly email with important information about scleroderma and the National Scleroderma Foundation

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Living Well with Scleroderma

WebScleroderma Voice Magazine. The National Scleroderma Foundation provides a wealth of information about the disease, about the resources you need to manage the illness to …

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National Scleroderma Foundation

WebIf you live in a geographic area that is not served by a Designated Scleroderma Research and Treatment Center, please contact the Foundation to find a rheumatologist with …

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Treating Scleroderma

WebThe overall goal of treatment and management is to minimize the impact of the disease on your child’s current and future life, weighing the risks and benefits of medication. Treating …

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Treatments & Medications

WebPain Medications. Pain is a common symptom for people living with scleroderma. You may have pain, stiffness or aches in your joints or muscles. Medications can help you manage …

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The Assistance Fund Opens New Program for Systemic Sclerosis

WebORLANDO, Fla., January 29, 2024 (Newswire.com) – The Assistance Fund, an independent charitable patient assistance organization that helps patients and families facing high …

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Eating Well with Scleroderma

WebThe foods we eat affect our health in many ways, for better or for worse. Fruits and vegetables are beneficial foods that provide our bodies with

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Inside & Out with Dr. Maureen Mayes

WebYouTube recording is now live: The symptoms of scleroderma vary greatly from person-to-person, and not all people with scleroderma develop all complications. Dr. Maureen …

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Pediatric Education

WebThe American Academy of Pediatrics recommends that the process of transition should begin at age 14, with a focus on developing self-management skills in the teenage years. …

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