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REPRODUCTIVE HEALTH IN WOMEN WITH BLEEDING …

WEBTREATMENT OF HEMOPHILIA April 2009 · No. 48 REPRODUCTIVE HEALTH IN WOMEN WITH BLEEDING DISORDERS Rezan A. Kadir Department of Obstetrics and …

Actived: 1 days ago

URL: https://www1.wfh.org/publication/files/pdf-1206.pdf

Identification & Diagnosis – WFH

WEBThe WFH estimates that over 75% of expected people living with hemophilia worldwide have not yet been identified and diagnosed. Identification and diagnosis rates …

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WFH Physical Examination Score (aka Gilbert score)

WEBDescription. This tool measures joint health, in the domain of body structure and function (i.e. impairment), of the joints most commonly affected by bleeding in …

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Hemophilia Joint Health Score (HJHS)

WEBDescription. The HJHS measures joint health, in the domain of body structure and function (i.e. impairment), of the joints most commonly affected by bleeding in hemophilia: the …

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PSYCHOSOCIAL CARE FOR PEOPLE WITH HEMOPHILIA

WEBPsychosocial functioning and well-being are often speci-fic to age and cognitive development. Issues and stressors arise at diferent stages. These stages can be …

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Compendium of Assessment Tools

WEBHemophilia is a rare disease and its management is multi-faceted. With advances in medical care including prophylactic factor replacement, the need for outcome …

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Principles of care – Guidelines – World Federation of Hemophilia

WEBTo cite the Treatment Guidelines: Srivastava A, Santagostino E, Dougall A, Kitchen S et al. World Federation of Hemophilia. WFH Guidelines for the Management of Hemophilia, …

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AN INTRODUCTION TO KEY CONCEPTS IN HEALTH …

WEB2 An Introduction to Key Concepts in Health Economics for Hemophilia Organizations Most European and many other countries now have HTA agencies (listed in Appendix 2).

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Overview of World Federation of Hemophilia Treatment …

WEBHemophilia is a Global Disease. Therapeutic advances in hemophilia arriving at breathtaking pace, uneven distribution. 60% of world (LMIC, LIC) use 7% of available …

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About the WFH – WFH

WEBThe World Federation of Hemophilia (WFH) is a non-profit organization dedicated to improving and sustaining care for people with inherited bleeding disorders …

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QUALITY DATA COLLECTION

WEBFACT HEET How to collect quality data Data can be collected at the level of the community (number of patients, cost per unit of factor, total

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World Hemophilia Day – WFH

WEBOn April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day. The theme of the event this year is …

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About Bleeding Disorders – WFH

WEBAbout Bleeding Disorders. In people with bleeding disorders, the blood clotting process doesn’t work properly, with the result that they can bleed for longer than …

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COMPREHENSIVE CARE OF HEMOPHILIA

WEBComprehensive care promotes physical health, psychosocial well-being, and quality of life for people with hemophilia and reduces morbidity and mortality.11-13 It should …

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Report on the Annual Global Survey 2022

WEB4 REPORT ON THE ANNUAL GLOBAL SURVE 2022 b) Countries with small populations can appear to have too many identified patients. Countries submitting data to the WFH …

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Health Questionnaire English version for the USA

WEBGroup EQ-5DTM is a trade mark of the EuroQol Group. We would like to know how good or bad your health is TODAY. This scale is numbered from 0 to 100. 100 means the best …

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Genetic counsellinG for HemopHilia

WEBGenetic counsellinG for HemopHilia revised edition michelle alabek Hemophilia Center of Western Pennsylvania, Pittsburgh, U.S.A. richa mohan Chair, WFH Psychosocial …

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