Sharing Health Data For Research
Listing Websites about Sharing Health Data For Research
FAIR, ethical, and coordinated data sharing for COVID-19 respons…
(2 days ago) People also askWhy is sharing data important?Sharing data allows us to have the fullest possible understanding of health challenges, to develop new solutions, and to make decisions using the best available evidence. The Research for Health department has helped spearhead the launch of a new policy from the Science Division which covers all research undertaken by or with support from WHO.New WHO policy requires sharing of all research datawho.intShould health data be shared?Furthermore, it can seriously stimulate research and data democratisation. Nevertheless, sharing health data can be cumbersome and requires a team effort that combines expert knowledge of different disciplines, including ethics, privacy, healthcare, data infrastructure, and data science.A guide to sharing open healthcare data under the General Data - Na…nature.comWhy do we need to share personal data for Health Research?Understanding the wide range of benefits accrued from the sharing of personal data for health research, their linkage to SDGs, the need to continue pursuing health priorities, and an indication of what is now being lost in consequence of the recent impediments. Particular issues for urgent transfer of data highlighted by the COVID-19 pandemic.International Sharing of Personal Health Data for Researcheasac.euHow do researchers share data?Many researchers share data by uploading their datasets to data lakes or dataverses, data storage, and sharing resources, such as GitHub, Harvard Dataverse, Figshare, Zenodo, Open Science Framework (OSF), Vivli, Dryad, or Mendeley Data, among others.FAIR, ethical, and coordinated data sharing for COVID-19 response: a thelancet.comFeedbackWHOhttps://www.who.int/news/item/16-09-2022-new-whoNew WHO policy requires sharing of all research dataWebScience and public health can benefit tremendously from sharing and reuse of health data. Sharing data allows us to have the fullest possible understanding of health challenges, to develop new solutions, and to make decisions using the best available …
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Home Page Data Sharing - National Institutes of Health
(4 days ago) WebRegister Today for NIH Virtual Workshop - Population Descriptors for Legacy Genomic Data: Challenges and Future Directions. Hosted by NIH. May 28, 2024 - May 29, 2024. …
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FAIR, ethical, and coordinated data sharing for COVID-19 …
(3 days ago) WebData sharing is central to the rapid translation of research into advances in clinical medicine and public health practice. In the context of COVID-19, there has been a rush …
https://www.thelancet.com/journals/landig/article/PIIS2589-7500(23)00129-2/fulltext
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A guide to sharing open healthcare data under the General Data
(Just Now) WebSharing healthcare data is increasingly essential for developing data-driven improvements in patient care at the Intensive Care Unit (ICU). Care and Public Health …
https://www.nature.com/articles/s41597-023-02256-2
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Unlocking the potential of health data to help research …
(Just Now) WebUnlocking the potential of health data to help research and treatments. Medical records can be tricky to access because of confidentiality and variability, but data-sharing efforts are helping to
https://www.nature.com/articles/d41586-022-01205-0
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Data Sharing Approaches Data Sharing - National Institutes of …
(6 days ago) WebMethods for Sharing Scientific Data. Under the 2023 Data Management and Sharing (DMS) policy, NIH encourages investigators to use an established repository. …
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International Sharing of Personal Health Data for Research
(1 days ago) Web1 Introduction: personal data and health — 11 1.1 Sharing matters: research data as a global public good — 11 1.2 Lessons from COVID-19 — 14 1.3 Protecting patients …
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Remove obstacles to sharing health data with researchers - Nature
(Just Now) WebInternational sharing of pseudonymized personal data among researchers is key to the advancement of health research and is an essential prerequisite for studies …
https://www.nature.com/articles/s41591-021-01460-0
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Transforming Health Data to Actionable Information: Recent …
(3 days ago) WebDirect-access HIE is a centralized approach where healthcare data sharing partners provide health data as they are available into a commonly accessible system. …
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9719753/
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Data Sharing and Reuse of Health Data for Research
(1 days ago) WebAbstract. Facilitating data sharing and the reuse of electronic health data for research is an important foundation for reengineering and streamlining research …
https://link.springer.com/chapter/10.1007/978-3-031-27173-1_9
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Beyond open data: realising the health benefits of sharing data
(1 days ago) WebGetting more health out of the same data. Data sharing is often asserted to be good for health and to generate new information that can save lives.14 We found …
https://www.bmj.com/content/355/bmj.i5295
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Principles for Health Information Collection, Sharing, and Use: A
(Just Now) WebThis “business associate agreement” exception has recently been used broadly. 42 HIPAA permits the use of identifiable data for operations and quality …
https://www.ahajournals.org/doi/10.1161/CIR.0000000000001173
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The Benefits of Data Sharing - Sharing Clinical Research Data
(5 days ago) WebData Sharing to Enable Independent Reanalysis. Steven Goodman, associate dean for clinical and translational research and professor of medicine and …
https://www.ncbi.nlm.nih.gov/books/NBK137823/
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Sharing Health Data FINAL - National Academy of Medicine
(9 days ago) WebIn the progenitor publication, Health Data Sharing to Support Better Health Outcomes: Building a Foundation of Stakeholder Trust, barriers cited by researchers and research …
https://nam.edu/wp-content/uploads/2022/01/Sharing-Health-Data-prepub-FINAL.pdf
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What ethical approaches are used by scientists when sharing …
(4 days ago) WebThis study is a secondary analysis of interviews of scientists who use health data, and it followed a study that examined health data users’ views on governance …
https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-022-00779-8
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Developing Data Sharing Models for Health Research with Real
(Just Now) WebCritical to the success of data sharing is to design secured data sharing platforms around patient preferences and expectations. The objective of this review was …
https://link.springer.com/article/10.1007/s10916-022-01875-3
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SHARING DATA, SAVING LIVES - American Hospital Association
(1 days ago) Web6. Shared Best Practices. Information sharing is happening in pockets but needs to be expanded. All stakeholders should share best practices to build on what works. Sharing …
https://www.aha.org/system/files/2019-01/Report01_18_19-Sharing-Data-Saving-Lives_FINAL.pdf
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Study finds the risks of sharing health care data are low
(3 days ago) WebMany other research groups have also used the data, and others have created similar databases in countries around the world. More widespread sharing of …
https://news.mit.edu/2022/patient-data-risks-low-1006
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All of Us Returns Health-Related DNA Results to 100,000 Participants
(1 days ago) WebParticipants can share data from biosamples, surveys, physical measurements, electronic health records (EHRs), and wearable devices. These comprehensive data are made …
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EU Health Data Space: more efficient treatments and life-saving …
(8 days ago) WebIt will be possible to download the health record free of charge. Data-sharing for the common good with safeguards. Additionally, the Health Data Space would …
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Research ethics and artificial intelligence for global health
(4 days ago) WebThe ethical governance of Artificial Intelligence (AI) in health care and public health continues to be an urgent issue for attention in policy, research, and practice …
https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-024-01044-w
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Data science event showcases new approaches to environmental …
(8 days ago) WebResearchers and big data specialists from across the country, including NIEHS grantees, gathered at North Carolina State University (NC State) April 5 for the Data Science and …
https://factor.niehs.nih.gov/2024/5/feature/3-data-science
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A Scholarly Dialog on Recent Trends in National Institutes of …
(7 days ago) WebBackground: The National Institutes of Health (NIH) is the major funding agency for biomedical research in the United States. To initiate a scholarly dialog about …
https://www.liebertpub.com/doi/full/10.1089/thy.2024.0084
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Frontiers Implementation of the electronic health record (EHR) in …
(2 days ago) WebIntroduction: The digitalisation of the German healthcare system enables a wide range of opportunities to utilize healthcare data. The implementation of the EHR in …
https://www.frontiersin.org/articles/10.3389/frhs.2024.1370759
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Ethical sharing of health data in online platforms – which values
(3 days ago) WebHealth data sharing: An interoperability policy in the making. Many public and private funding agencies recognise the value of shared data. However, if data …
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5563504/
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This Chinese virologist shared crucial Covid-19 data. Then his …
(3 days ago) WebZhang became the first scientist to share Covid-19’s genomic sequence on January 11, 2020 as the World Health Organization waited for China to provide the data …
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UT institutions collectively surpass $4.3 billion in research for
(4 days ago) WebUT’s $4.3 billion research enterprise is one of the nation’s most innovative, ranking No. 1 in Texas and No. 2 in the U.S. for federal research expenditures. With an …
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Journal of Medical Internet Research - Improving the Prognostic
(4 days ago) WebBackground: Clinical notes contain contextualized information beyond structured data related to patients’ past and current health status. Objective: This study …
https://www.jmir.org/2024/1/e54363
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The public’s comfort with sharing health data with third-party
(Just Now) WebPrevious research on patient willingness or comfort with sharing healthcare data indicate patient reservations about the use of healthcare data outside of those …
https://www.nature.com/articles/s41599-020-00641-5
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Mental Health Awareness Month Arrives Amid a - University of …
(7 days ago) WebRheeda Walker, University of Houston psychology professor and expert on mental health and suicide prevention, dispels misconceptions about mental health and …
https://uh.edu/news-events/stories/2024/may/05012024-may-mental-health-month-walker.php
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Child Medicaid Disenrollment Data Shows Wide Variation in State
(5 days ago) WebKey Findings By December 2023, 4.16 million fewer children were enrolled in Medicaid and the Children’s Health Insurance Program (CHIP) nationwide, than the …
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Understanding Disaster Response: NSF CAREER Award Supports …
(5 days ago) WebBy studying how communities share risks and resources, we can develop more systematic approaches to disaster response.” The interdisciplinary project integrates …
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Colon cancer screening may be safe every 15 years for some, …
(5 days ago) WebBy Kaitlin Sullivan. New research suggests patients with an average risk of colon cancer may only need to undergo a colonoscopy screening every 15 years instead …
https://www.nbcnews.com/health/cancer/colonoscopy-15-years-colon-cancer-average-risk-rcna150372
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Novo Nordisk drops 5% after rival Amgen teases weight-loss drug …
(9 days ago) WebShares in Danish drugmaker Novo Nordisk dropped as much as 5.3% on Friday, set for their biggest one-day fall since August 2022, after rival Amgen said it was …
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IQVIA trims full-year revenue forecast on stronger dollar
(6 days ago) WebFollow. May 2 (Reuters) - Contract research firm IQVIA Holdings (IQV.N) lowered its annual revenue forecast on Thursday due to a stronger dollar and reported a …
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Republicans Step Up Attacks on Scientist at Heart of Lab Leak Theory
(6 days ago) WebMay 1, 2024. House Republicans demanded on Wednesday that the president of a virus-hunting nonprofit group be criminally investigated and barred from federal …
https://www.nytimes.com/2024/05/01/science/covid-lab-leak-ecohealth-nih.html
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