Personal Health Data For Research

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Health data research explained - HDR UK

(3 days ago) WEBFinally, from a population health research standpoint, consumer consent to sharing health care information and the subsequent widescale accumulation of PHR data have the potential to act as a valuable source of public health information for …

https://www.hdruk.org/about-us/what-we-do/health-data-research-explained/

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Opportunities and challenges in the use of personal …

(1 days ago) WEBObjective: Understand barriers to the use of personal health data (PHD) in research from the perspective of three stakeholder groups: early adopter individuals who track data …

https://pubmed.ncbi.nlm.nih.gov/26335984/

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Personal Health Records: A Systematic Literature Review

(3 days ago) WEBFor the security and privacy of the health data, the answer to this research question offered a clear definition of the profiles that are allowed access to the PHR and …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5251169/

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Personal health data: A systematic mapping study

(7 days ago) WEBPersonal health data (PHD) research has been intensified over the last years, attracting the attention of scientists from different fields, such as software …

https://www.sciencedirect.com/science/article/pii/S1386505618302521

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Personally Collected Health Data for Precision Medicine …

(3 days ago) WEBIntroduction. In the digital era, personal mHealth Apps combined with the Internet of Health Things (IoHT) technologies have the potential to help patients …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6559119/

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Personal health data: A systematic mapping study - PubMed

(1 days ago) WEBBackground: Personal health data (PHD) research has been intensified over the last years, attracting the attention of scientists from different fields, such as software …

https://pubmed.ncbi.nlm.nih.gov/30153927/

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Opportunities and challenges in the use of personal …

(6 days ago) WEBAbstract. Objective: Understand barriers to the use of personal health data (PHD) in research from the perspective of three stakeholder groups: early adopter …

https://academic.oup.com/jamia/article/23/e1/e42/2379811

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Personal health data: A systematic mapping study

(1 days ago) WEBPersonal health data (PHD) research has been intensified over the last years, attracting the attention of scientists from different fields, such as software …

https://www.sciencedirect.com/science/article/abs/pii/S1386505618302521

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Who owns (or controls) health data? Scientific Data - Nature

(Just Now) WEBThe ongoing debate on secondary use of health data for research has been renewed by the passage of comprehensive data privacy laws that shift control from …

https://www.nature.com/articles/s41597-024-02982-1

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Personal Health Record for Personalizing Research and Care …

(9 days ago) WEBCombinations of health-related research data and clinical data generated, e.g., from wearables, can increasingly provide new insights about a person’s health. Combining these data in a personal health record (PHR), which is managed by citizens themselves, can enhance research and enable both personalized care and prevention. …

https://www.mdpi.com/2075-4426/13/4/601

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Secondary research use of personal medical data: patient attitudes

(4 days ago) WEBThe SARS-CoV-2 pandemic has highlighted once more the great need for comprehensive access to, and uncomplicated use of, pre-existing patient data for …

https://bmcmedethics.biomedcentral.com/articles/10.1186/s12910-021-00728-x

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Personal health information in research: Perceived risk

(7 days ago) WEB1. Introduction. Health-related research is a national priority firmly embedded in Australian policy and funding goals [1], [2].The value of existing health data has been …

https://www.sciencedirect.com/science/article/pii/S1532046419301406

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SECONDARY USE OF PERSONAL HEALTH DATA - World …

(4 days ago) WEBof health data. At the European Union (EU) level, the General Data Protection Regulation (GDPR) enacted in 2018 provides a firm legal basis governing the use of personal data, …

https://apps.who.int/iris/bitstream/handle/10665/332521/Eurohealth-25-2-7-10-eng.pdf

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The public’s comfort with sharing health data with third-party

(Just Now) WEBHealthcare systems are using big data-driven methods to realize the vision of learning health systems and improve care quality. In so doing, many are partnering …

https://www.nature.com/articles/s41599-020-00641-5

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International Sharing of Personal Health Data for Research

(6 days ago) WEBFor research to thrive, pseudonymised personal data often needs to be shared internationally between research groups in a straightforward and timely fashion, whilst …

https://www.interacademies.org/publication/international-sharing-personal-health-data-research-0

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International Sharing of Personal Health Data for Research

(1 days ago) WEBCollecting and combining health data is fundamental for the advancement of medical research, reducing health inequalities, and improving disease diagnosis and treatment. …

https://easac.eu/fileadmin/PDF_s/reports_statements/Health_Data/International_Health_Data_Transfer_2021_web.pdf

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H U M A N S E RVICES S Protecting Personal Health A L A T E …

(2 days ago) WEBProtecting Personal Health Information in Research: Understanding the HIPAA Privacy Rule e l u R y c a P A A P r i v I H e h T D E P A R T M E N T O F H E A L T H & H

http://privacyruleandresearch.nih.gov/pdf/HIPAA_Privacy_Rule_Booklet.pdf

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Balancing health and personal data protection: operational and …

(1 days ago) WEBPublic health institutions are increasingly required to balance fundamental rights and data protection principles. To address this, WHO/Europe has released easy …

https://www.who.int/europe/news/item/08-06-2021-balancing-health-and-personal-data-protection-operational-and-policy-considerations

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Journal of Medical Internet Research - Person-Generated Health …

(4 days ago) WEBBackground: The increased pervasiveness of digital health technology is producing large amounts of person-generated health data (PGHD). These data can …

https://www.jmir.org/2024/1/e53327

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A guide to sharing open healthcare data under the General Data

(Just Now) WEBHowever, EU laws on processing (personal) data, such as the GDPR 24, remain a challenging factor when sharing personal health data, as this means more …

https://www.nature.com/articles/s41597-023-02256-2

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Public interest in health data research: laying out the conceptual

(6 days ago) WEBThe future of health research will be characterised by three continuing trends: rising demand for health data; increasing impracticability of obtaining specific consent for …

https://jme.bmj.com/content/46/9/610

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Consumer Willingness to Share Personal Digital Information for …

(8 days ago) WEBImportance Consumers routinely generate digital information that reflects on their health.. Objective To evaluate the factors associated with consumers’ …

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2788307

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Using personal health information in medical research - PMC

(3 days ago) WEBRecent growth in the regulation of research involving patients or their personal data in the United Kingdom—such as research governance, the European …

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1336750/

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A systematic analysis of failures in protecting personal health data: …

(7 days ago) WEB1. Introduction. Existing research emphasizes the beneficial effects of using digital health systems on various aspects of performance and care quality (Chandwani …

https://www.sciencedirect.com/science/article/pii/S0268401223001007

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The U.S. wants to change how researchers get access to a huge

(2 days ago) WEBHealth researchers are urging the U.S. government to rethink a plan that would require them to use an in-house government system, and pay substantially more, …

https://www.science.org/content/article/u-s-wants-change-how-researchers-get-access-huge-trove-health-data-many-don-t-idea

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Cultural Relativity and Acceptance of Embryonic Stem Cell …

(6 days ago) WEBVoices in Bioethics is currently seeking submissions on philosophical and practical topics, both current and timeless. Papers addressing access to healthcare, the …

https://journals.library.columbia.edu/index.php/bioethics/article/view/12685

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Data and Statistics on Fungal Diseases Fungal Diseases CDC

(3 days ago) WEBCosts. Direct medical costs are estimated at $6.7 to $7.5 billion yearly. Indirect costs from premature deaths and missed work or school are estimated at $4 …

https://www.cdc.gov/fungal/data-research/facts-stats/index.html

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Environmental Changes Are Fueling Human, Animal and Plant …

(3 days ago) WEBMay 8, 2024. Several large-scale, human-driven changes to the planet — including climate change, the loss of biodiversity and the spread of invasive species — are making …

https://www.nytimes.com/2024/05/08/health/environment-climate-health.html

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Humana & Privia Medical Group–Georgia Partner with Bamboo …

(7 days ago) WEBThe program was one of only 22 presentations selected for a Points of Light Award on May 14 at the 2024 K2 Collaborative Summit, a KLAS Research conference …

https://www.morningstar.com/news/business-wire/20240516621580/humana-privia-medical-groupgeorgia-partner-with-bamboo-health-to-earn-klas-research-points-of-light-award

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